Murphy’s
Law—if it can go wrong, it will. It’s been one thing after another in rapid
fire this March! Starting in February I contracted RSV and am still fighting
off the remains of it. The RSV turned into pneumonia in my left lung. Then I
found out I have an E.coli UTI (tmi?) which is common for post transplant
patients. And here’s the cake—after going in to Cincinnati (March 9th)
to find all of this out, they took my blood for a CBC and cultures. They found
leukemic cells. I’d relapsed. They admitted me for IV antibiotics for all that
was wrong with me. When I got released a few days later, I started to have
severe shoulder pain to where I couldn’t sleep and was in tears. Brian took me
in to the local ER. I had a superficial blood clot in my arm from my IV.
Awesome. So the docs prescribed some pain killers. My body seems to hate pain
killers, but I was determined to celebrate Little Man’s 4th
BIRTHDAY!!! Yay!!! So I took the medicine and it was working decently and I
made it through the day! That evening when I was about to take more meds, I
started itching terribly. I stopped the meds immediately and sat around with
frozen veggies under my arms and on my tummy until the itching was tolerable
enough to get up. And of course the natural thing to do at that point is clean
out your fridge… So I’m cleaning out and rearranging, and a big glass storage
container came jumping out, landing solidly on my pinky toe, breaking it. Just
call me Murphy.
So I kinda dropped the bomb that I’ve relapsed. It’s been a shock for all of us. Living with Li-Fraumeni Syndrome, I’ve always known that I’d keep getting cancers, but I was really hoping to have a bigger break than less than a year. We’ve been keeping it pretty private this time around and are asking all your respect in this as well. Time is precious, and we just want to spend as much as possible as a family. I will still try and keep you updated on this blog, but I make no promises. Robert D. Hales says, “When you can’t do what you’ve always done, then you only do what matters most.”
So I kinda dropped the bomb that I’ve relapsed. It’s been a shock for all of us. Living with Li-Fraumeni Syndrome, I’ve always known that I’d keep getting cancers, but I was really hoping to have a bigger break than less than a year. We’ve been keeping it pretty private this time around and are asking all your respect in this as well. Time is precious, and we just want to spend as much as possible as a family. I will still try and keep you updated on this blog, but I make no promises. Robert D. Hales says, “When you can’t do what you’ve always done, then you only do what matters most.”
Know that we love you all very much.
